Kam Redlawsk was born in Daegu, South Korea in 1979 and adopted by an American family in Michigan in 1983. Growing up in an almost entirely white community, she was made to feel like an outsider for her physical differences. It was during college that Ms. Redlawsk was diagnosed with what is known today as GNE myopathy, a rare genetic disease that leads to weakness and wasting in one’s muscles and affects only around one thousand people worldwide. Today, she uses her skills and artistic talent for advocacy and spreading awareness about rare diseases like hers. Dealing with loneliness and watching her disease progress to affect more and more of her physical abilities over time only pushed her to live life to the fullest by seeking out new experiences. In sharing her experiences as a Korean adoptee and someone affected by a physical disability, she hopes to spread the message that everyone has their own reserves of unlimited courage and that empathy can only be built when people begin to seek out each other’s differences.
All content has been recorded in advance prior to the US outbreak of COVID-19.